Day 4

WE ARE GOING HOME!!!!

The good news is that Josephine has not had any seizures during our visit.  However, Dr. Bojko said she is having significant spiking in her brain activity, particularly while sleeping.  The average brain should have no spike in brain activity.  This means Josephine is prone to seizures and is something we need to monitor on a regular basis.  No medication is needed at this time, which is great because she is continuing to make progress in therapy and the meds could slow her down again.

We will have to do an ambulatory EEG again in 3 months, just to make sure the spiking hasn’t gotten any worse.

See ya at home!!!!

Hospital: Day 3

Our morning was wonderful today because we got to see Little Sheldon!  He came to visit his sister and boy was she happy to see him!  I realized at that moment just how much I missed not seeing him.  What a strong boy he is.  I know he has been concerned about Josephine and was happy to see her too.

And thanks to our wonderful friend, Trish for all her help.  She hosted a playdate and gave us all some much needed time to unwind.

Dr. Morse, who is Dr. Bojko’s partner, said there are regular spikes in her brain activity and they needed to monitor Josephine for one more day, at least.

Not really sure what that means and we are looking forward to hearing more about what happens next.

Are we going to need to stay longer?  What else has to be done?  Will she have to be on medication?  If so, why and for how long?  What if she is not on medication?  What happens?

So much do deal with for such a little girl…